I’ve damaged relationship with some friends lately, people I’ve known two…five…ten…seventeen years.
My politics are too aggressive. My viewpoint is too harsh. My animosity towards the healthcare situation is too strong. One friend told me she liked me better before cancer.
Me too. Sort of. Me too.
There’s a lot of WTH to process in that statement.
Before cancer, I kept my politics to myself or family and close friends. Long, long before cancer, my mother would leave a room if my father and I were watching the news together and Reagan, Bush, or Clinton, or Ann Richards or Bush Jr were on the news in some way -she didn’t like mediating our politics because I was a Republican and my father, a Democrat. Long before cancer, I realized I disagreed with much of the GOP platform, and I realized my politics were shifting moderate, democratic. Long before cancer, I minored in political science, found myself fascinated with constitutional law, toyed with the idea of law school. Before cancer, I voiced my opinions, but I did it quietly, in a roundabout way because I’m a people pleaser. I don’t enjoy when I upset or hurt people. Then…cancer.
When I was diagnosed, one of the only sighs of relief I took was knowing the ACA protected me from being dropped by my insurance company and prohibited annual and lifetime limits or caps. I knew my treatments and surgeries would be covered- I would not run afoul of an annual limit or test the reaches of a lifetime limit. Then…Trump, the GOP.
The AHCA, a bill so despicable, Congress exempted themselves from it and opened the door to annual and lifetime limits, even on employer provided insurance. Again.
When the House passed the AHCA, a friend with a lifelong autoimmune disease texted me that she felt nauseous, afraid of what might happen, especially since she’s in the throes of a flare right now. I called her instead of texting. We talked for nearly an hour, both of us terrified of what lies ahead for our health, our families, if this atrocious bill becomes law in any shape of the House form.
Another friend asked me why I’m really all that worried since, “your cancer is gone.” My head exploded. Then, I corrected her, told her I am no evidence of disease, and all that means is right now. When I see Dr. O on June 20th for my next 5 month check up, I’ll know my future five month fate. We live check up to check up, scan to scan, test to test, us cancer patients. I’ll either gain a five month reprieve or take part in another conversation regarding cancer I hoped I’d never have.
It’s funny, and by funny, I mean not funny at all, but when I was diagnosed, when I was quiet about my politics, when I soldiered on with a fake smile and an “I’m fine,” lie, I had all the support.
Then, I spoke up to my friends about the protections of the ACA. I used clinical evidence from the ASCO and from the annual SABC conference. I used personal evidence. I used nonpartisan evidence from CBO. I condemned those who voted for Trump for what millions of people with preexisting and life threatening conditions are now enduring, the fear of what happens next, as if having a medical (or mental or physical) condition isn’t enough worry and stress. I begged friends and family to understand from where my fear came.
My condemnation was too much, I guess. So now, I’m left to wonder is it me who is in the wrong. Do I regret the stance I’ve taken, the choices I’ve made?
A little, actually.
I’m a people pleaser. I hate causing drama -I’ll enjoy a bowl of popcorn as I watch it if it doesn’t involve me, though. I don’t want to be disliked. I’m choosy when it comes to friends, and I’m grateful for my small squad of framily because not a one if those friends I trust like family have been anything but loving and supportive. It’s the bigger circle that’s shrunk, and I am saddened by that because I am choosy and thought I chose well. But, then again, I’ve been blindsided and backstabbed more than once before. Maybe my judgement isn’t the best, but the reason why is the best: I believe the best in most people, especially those I know personally. I give second, third, fifth, twentieth chances.
I know the adage, you can’t please all the people all the time. I understand that. What I don’t understand is how you can support me through cancer, cancer treatment, and cancer surgeries but then be offended and disappear when I call out politics and political games when those directly affect my life and the lives of those I love. What would you do? Remain silent? Put on a fake smile and an “I’m ok” lie?
Been there. Done that. I did it to protect my friends and family because I figured no one really needed to hear how bad I felt from chemo, whatever reaction I was having to Perjeta, how tired and overwhelmed and terrified I was (and still am). My parents, my in laws, my husband all knew. They lived it with me. Sometimes, the last thing I wanted to do was talk about cancer and treatments and surgeries and prognosis. Besides, it was made pretty clear to me that people expected me to breeze through as though it was nothing because it’s breast cancer. It’s treatable. It’s easy.
Now, I know the people who expected that of me were fools, but worse, so was I. I allowed that expectation take hold in me. I couldn’t let anyone down. If I did, I was a disappointment, and that’s one thing I cannot abide, being a disappointment.
I’ve said and done some pretty stupid things. I’ve hurt people without meaning to do so. I am sorry for that.
I’m not sorry, though, that cancer made me more likely to speak up than remain silent. I have so much to lose if I remain silent. I’m sorry if I’ve disappointed you, but I won’t stop calling out those in power who are trying to undo eight years of healthcare progress. My life literally depends on it, and you know what?
Yours might too.